Faith, Family, & Focaccia

A faith and culture Mommy blog, because real life gets all mixed together like that.


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So Many Kinds of Tired

At first the exhaustion was chemical.

The blurred, altered consciousness of anesthesia,

The floating unrealness.

The loss of inhibitions,

producing stories others can later tell me

of the unfiltered things I said

in the aftermath.

The tiredness of the unconsciousness

that allowed for cutting, and reshaping

My Body

while I was spared awareness.

Then came the dragging lethargy of recovery.

My brain still a bit numb

from pain,

and from pain pills,

and from sudden, severe restrictions on how I could use

My Body,

or not use it, in this case.

The insensitivity of forced inactivity,

blended with the utterly enervating effort engaging

my immune system

and cellular repair functions.

You never think about how much energy is needed.

Just to heal.

Just to lie still

and let the miracle of self-mending flesh slowly go about its work,

resisting any unnecessary movement, stretching, coughing, even laughing.

So that incisions can become scars.

Bruised tissue can release its swelling,

trusting me to coddle it

until it can return to some new version

of normal function.

And it has.

In the liminal time since one month ago tomorrow.

Thirty-one days of recovery,

of caution,

of pain, and restriction, and following Doctors’ orders.

One month of giving

My Body

the time and permission

to gradually move toward wholeness…

or at least a new shape that is shaping wholeness with the remaining parts of me.

I have followed the rules.

I have (mostly) healed.

The tiredness, now, is much less physical.

I can, again, roll out of bed without sharp pain.

I can get through a day without relief delivered via capsule.

I can drive and hour, and work a ten-hour-day, and drive the hour back without crashing my car.

I can walk my dog and prepare a balanced meal.

My Body

is working for me again

in most of the ways that I am used to.

But I am still. So. Fucking. Tired.

I am tired of wearing this compressing, chafing, irritating, and horrifically unflattering post-surgical bra

24-hours a day.

I am tired of avoiding looking at myself in the mirror without it on.

(Or even with is on, under concealing clothing, that, actually, cannot conceal how the shape of

My Body

has changed.)

I am tired of performing normalcy, with a spirit of gratitude.

Answering the same questions, with the same practiced smile.

Rehearsing the treatment plan and the positive prognosis

as though that script actually answers “how I’m doing.”

I am tired of pretending like

My Body

is the sum total of my functioning.

When, even as my cells, and scars, and energy are healing,

the weight of unspoken words and uncomfortable feelings

get heavier each day, each conversation, each in-out breath.

I feel pressed down.

By the non-nervous-system pain of feeling deformed.

By the shame of still caring about that deformation, when at least I still have my life.

By the isolation of a doctor dismissing my dysphoria because it has nothing to do with the pathology of cells.

By the awareness of how a nearly-50-year-old woman is already nearly

invisible…

so why does it matter if

My Body

no longer pleases the anonymous stranger’s eye

or mine?

I am tired of feeling like I am not supposed to care

about this non-medical part

of surviving cancer.

But I do care.

And I am tired of pretending like I don’t.

I need more than just

My Body

to heal.

I need my love for

My Body

to heal too.


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18 Years: On How Grief Changes

Today is my 18th death day.

Not literally, I suppose. The demise that annually intrudes on my consciousness is not my own, at least not in a physical or encompassing sense. My life has continued on since July 17, 1996 and it has been a good life, filled with far more joy than grief. But it has now been eighteen years since my Dad left forever — through his own choice — and that loss has been one of the single-most shaping experiences of my life.

Eighteen years seems like an eternity in some ways – nearly half my life. Occasionally, when people learn about his death and express sympathy it is easy to brush their consolations aside. “It’s been so long…” But that dismissal rejects one of the fundamental realities of grief:

Grief grows with the life that bears it.

I don’t mean that grief grows in weight or importance. Generally time does offer healing, and the sharp intensity of pain diminishes over time. But growth does not always mean increase; it can also mean adaptation. As I have changed in the eighteen years since my Dad’s death, my grief has changed as well. It would have to – the grief of a confused nineteen year old would no longer fit inside my soul; it would not line up with the curves and shading of my more fully adult perspective. It also would invalidate the impact of eighteen years of coping, the way that learning to live despite the hole in my heart has shaped the way I do that living.

So today, on my 18th death day,  I offer this reflection to my still-healing soul, and to any with whom it might resonate.

 


18th deathday

 

Eighteen years,

the age of maturation,

shift from child to adult.

The age society declare

for independence.

 

It has taken eighteen years,

oh, subtle irony,

for me to finally see

it is OK to say

“I need you.”